Wednesday, January 09, 2013

The last few weeks...

....have been a blur.

Right before Christmas, we drove to Arkansas and spent a few nights at White Rock Mountain State Park. We had gone there a couple years ago and when DH suggested we go, I didn't hesitate (I usually make all the trip or travel plans and was ecstatic!)

It was COLD! There was a small heater in the bathroom (there was electricity) but the rest of the cabin was warmed by fireplace. We have never had one and it was very fun putting the logs on, stoking the fire and just smelling the different smells from it all. When we woke up and were too cold to get out of bed, my second grader offered to help out! I felt like Tom Sawyer when he asked to help...sure, go ahead and get the ashes out, ok...if you insist, you can go outside on the porch and get the logs....oh, alright, go ahead and light it. We just stayed cuddled up until it was warm in there! And the weather outside was even colder! There wasn't any snow but it was extremely windy so it felt much colder than it was!
Photobucket
Photobucket
Photobucket

Of course, when we drove back home (after a 12 hour drive and crawled into bed,) we were awakened by my older daughter when she called after her water had broken. And, we were blessed with our first granddaughter, Olivia, who is just over 2 weeks now. They went to an appt with the geneticist yesterday (a couple hours away) and will go back there tomorrow to see the opthamologist and neurologist (MRI.) So many appointments, so much to do... They spent the night away to be able to get to the early 8am appointment so here is Olivia taking a nap during her first night away from home in a hotel with her mom and dad (and aunt, my younger daughter.) It's interesting to see how different people cope in stressful situations. It seems like we inadvertedly take turns being strong, then subside a little under all the pressure while allowing someone else to take the reins for a while...yet all of us try to be positive, loving and courageous. We've found some incredibly supportive online friends from FB groups, blogs and networking who also have someone they love in their lives who have Apert Syndrome. My daughter doesn't feel as alone as she initially did. However, she did say last night that she feels like she's sinking. She is stronger than she thinks she is. She just hasn't found her inner strength and purpose yet. It'll come...it may take some time though. I'm there to support her though. I gave her a book, Uncommon Beauty ,for her to read as well.
Photobucket

In between those events, I took my older son on a cub scout camping trip. It was a nice break and he enjoyed playing with his friends. Of course, it would have been SO much more fun had the weather cooperated. It rained.....all.day.long! Brrrr! That didn't stop the kiddos who found fun stuff to do. The parents seemed to be the ones who whined the most. We had taken our bikes to ride along some of the 37 miles of hiking trails in that state park but we were limited to the road in front of our campsites instead. But all in all, we had a great time!
Photobucket

4 comments:

Lauren Greene said...
This comment has been removed by the author.
Lauren Greene said...

Wow! You all have been super busy. The trip to Arkansas seemed like so much fun. Olivia is just beautiful, and I'm glad your daughter has so many supportive people in her life.

Þorgerður said...

Glad you all had a good trip...Little Olivia is beautiful...I I relly like that name :)the sleeping beauty of a newborn is just wonderful.

Floortime Lite Mama said...

Beautiful family
Starting out in the special needs world is very hard - as I can attest - but it gets easier and easier